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AmBlue

(3,452 posts)
23. You sound like me.
Fri Jun 24, 2022, 11:09 AM
Jun 2022

Except it's my elderly mother. She's lived with me the past 5 years. Though she had mild cognitive decline when she came here, she could still dress, toilet, and make a cup of tea and breakfast for herself, but she could not drive or understand money transactions. My husband was already long over the situation after the 2nd or 3rd year as my other siblings were supposed to be sharing in the care responsibilities. But that all evaporated, leaving me with full responsibility and my husband with a "part-time" wife.

After a surgical procedure last year, it was like someone flipped a light switch and Mom could no longer dress, toilet or do any of the basic tasks of daily living. She was diagnosed with vascular dementia. As a year since has worn on, she is increasingly confused, but still belligerent and either uncomprehending or unwilling to cooperate. She sees people not there, only knows me very rarely, and can only verbalize half of what she wants to say, and sometimes almost nothing at all. The thing that has pushed me over the edge is the incontinence which has gotten really unmanageable.

For the past year, she consumed nearly every waking moment of every day. Though I want to be everything she needs, I am just one person with a family that includes two kids in college (one studying from home, the other home for summer right now) and two family businesses neither of which I've been able to contribute to in any meaningful way. As I write this I sound calm, but believe me I am at my wits' end and have lost my patience and cool more than once.... like when she wants her tea warmed up for the third time, or keeps getting out of bed and won't leave me alone til I go with her and put her back to bed over and over. There are a dozen other examples. It's all so sad, and so frustrating. But the incontinence is just finishing me off.

I've been on a quest to find a good memory care facility for her, trying to convince family members "it's time" (no small task) and, after visiting a dozen places and asking a thousand questions, finally, finally she moves into memory care next week. As hard as this all has been, I've come to the realization they can do so much more for her than I can, with appropriate activities that are designed to keep her brain active, instead of doing a lot of sleeping. Now I am swamped with all the moving details, on top of all I have to do for her every day and I'm still at my wits' end, but there is now light at the end of the tunnel.

Dementia is a horrible disease and it can break the best of us as caregivers. Please get that diagnosis, find out if there is anything you can do to improve his condition. If not, be realistic about what you both need most right now. There is nothing wrong with asking for and finding help. And you are certainly NOT a bad wife. You must make ALL the hard decisions for both of you now, but be sure that YOUR needs are part of that equasion.

If you ever just need someone to talk to, feel free to message me. Wishing you all the best.

Recommendations

1 members have recommended this reply (displayed in chronological order):

You need help of course and I have no idea how to get it, hopefully someone does. Eliot Rosewater Jun 2022 #1
There are multiple reasons for short-term memory loss Murphyb849 Jun 2022 #2
Not knowing any more about you and your situation than I read in this post... COL Mustard Jun 2022 #3
First and foremost: you are not a horrible wife Raven123 Jun 2022 #4
♥️ a kennedy Jun 2022 #12
Contact your doctor's office deRien Jun 2022 #5
♥️ a kennedy Jun 2022 #13
Please call your local Agency for Aging ASAP JoeOtterbein Jun 2022 #6
I am so, so sorry. Phoenix61 Jun 2022 #7
I have limited perspective on your issue... VarryOn Jun 2022 #8
This is the best advice. Trueblue Texan Jun 2022 #21
We miss one thing our loved ones are going through ... EmmaLee E Oct 2023 #27
Yes, HUGS HELP is the best advice. EmmaLee E Jan 2024 #28
I'm so sorry you're going through this and you're not a bad wife. badhair77 Jun 2022 #9
I know your pain too well Moostache Jun 2022 #10
♥️ a kennedy Jun 2022 #15
I'm so sorry. Can you postpone the knee surgery? I ask spooky3 Jun 2022 #11
I am so sorry. I don't know how to help but you can't beat yourself up - you are not being a bad LoisB Jun 2022 #14
A change of diet and maybe medication Tetrachloride Jun 2022 #16
Please, please don't blame yourself Easterncedar Jun 2022 #17
Sending a big hug, and some comments MyMission Jun 2022 #18
I'm so glad you spoke of the stress caregivers endure. Trueblue Texan Jun 2022 #22
It's not his fault. It's not your fault either. Beastly Boy Jun 2022 #19
My Dad had dementia.... thecrow Jun 2022 #20
I just read this topic again.....and this really stood out to me.... a kennedy Jul 2022 #25
You sound like me. AmBlue Jun 2022 #23
A lot of what you describes sounds very familiar CountAllVotes Jul 2022 #24
Thank you. ♥️ a kennedy Jul 2022 #26
I really wish I had some advice for you... Hugin Mar 2024 #29
My thanks to all contributors oasis Apr 2024 #30
Yes, thanks MorbidButterflyTat Apr 2024 #31
I'm so sorry nt XanaDUer2 May 2024 #32
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