Spinocerebellar ataxia type 1. Anyone here familiar with this?

[Backseat Driver]

4. I can't tell you much about what to expect, but

NAF - The National Ataxia Foundation may be able to connect you as a caregiver and patient to a support group or others about what may work best for both of you.

Could your brother possibly qualify for or consider participation in any appropriate clinical trials regarding therapies for his specific diagnosis? It's only been known since 1992, evidently; so gathering lifetime data and therapy modalities are still important for best care and caregiving.

Take good care of yourself, as well, both mentally and physically. Keeping a journal might help keep everything ship-shape; you're likely to get lots of instructions from the pros and preferences from the patient. We'll be here for you, that is for sure!