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Chronic Health Conditions Discussion and Support

DeadLetterOffice

(1,352 posts)

2. A data bank of specialists who know about my illness

Reply to demtenjeep (Original post)

Wed Dec 7, 2016, 01:45 AM

Dec 2016

Having a rare (1 in 5000) chronic illness bites, because doctors don't know anything about it. And my illness is multi-systemic, so I need orthopedics, cardiology, rheumatology, GI, ophthalmology, neurology, pain management, PT/OT...

Having a database of knowledgeable doctors would be... life changing.

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what would you need? If a foundation asked what services you needed with your illness [View all] demtenjeep Dec 2016 OP

I am thinking beside the fundraising obvious demtenjeep Dec 2016 #1

A data bank of specialists who know about my illness DeadLetterOffice Dec 2016 #2

Medicare has piloted Cancer treatment in rural hospitals dixiegrrrrl Dec 2016 #3

those are great ideas demtenjeep Dec 2016 #4

Nothing right now, but if I had to go into a hospital marybourg Dec 2016 #5