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Chronic Health Conditions Discussion and Support

MsMAC

(91 posts)

2. She's been to Mayo Clinic three times in September and has an appointment with

Reply to Warpy (Reply #1)

Wed Oct 7, 2015, 10:08 AM

Oct 2015

a scleroderma specialist at KU Medical Center in Kansas City in about a week. We (the family) have discussed taking her to Johns Hopkins but nothing has been firmed up. I was interested in chatting with people who have this disease and learning how they deal with the everyday issues and if they are able to work. Thanks for your reply, I'll check out those sites.

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Systemic Scleroderma [View all] MsMAC Oct 2015 OP

Progress has been made treating it Warpy Oct 2015 #1

She's been to Mayo Clinic three times in September and has an appointment with MsMAC Oct 2015 #2

Fortunately, it's very rare Warpy Oct 2015 #3

Currently, her hands and skin are the most affected. She is also MsMAC Oct 2015 #4