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Chronic Health Conditions Discussion and Support

arthritisR_US

(7,774 posts)

14. I woke up the first morning and couldn't separate

Reply to Thinkingabout (Reply #13)

Sun Nov 10, 2013, 11:56 PM

Nov 2013

my lips, they were dried shut together with blood. Went into the water closet to get warm water to get rid of the blood to get my mouth open and that's when the blood started coming from my eyes, nose and ears...I then collapsed. At the hospital the Dr's told me they couldn't even register a count of my platlets they were so low.

Not a fun condition to deal with there is so much you have to be aware of, vigilant of. It certainly made the cancer treatment difficult. Good luck mate

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Does anyone have ITP, immune thrombocytopenic purpura, or low blood platelets? [View all] Thinkingabout Sep 2013 OP

I only know it's very treatable Warpy Sep 2013 #1

Yep, they want to charge $2500 per injection but settle for $1200. I also get weekly blood test to Thinkingabout Sep 2013 #2

Years ago I was diagnosed with ITP Idiopathic Thrombocytopenia. Different from what you have auntAgonist Sep 2013 #3

Thanks for your reply, prednisone is really not an option for me since I am also diabetic. Thinkingabout Sep 2013 #4

Has your Dr discussed removing your spleen auntAgonist Sep 2013 #5

We have discussed removing the spleen but since I am responding to NPLATE we are Thinkingabout Sep 2013 #7

I wish you well. The cost would bury me I'm afraid. auntAgonist Sep 2013 #8

Fortunately I have medical insurance which is covering most of the cost, or at least they are Thinkingabout Sep 2013 #9

I did a bit of reading up on it and it looks like 'your' ITP and mine are the same thing. n/t auntAgonist Sep 2013 #6

Had a few episodes of it years ago as a result of arthritisR_US Nov 2013 #10

Thanks for your post. My ITP is not result of Chemo. I read the other day they are Thinkingabout Nov 2013 #11

The chemo and radiation totally screwed up my arthritisR_US Nov 2013 #12

I had heard about essiac tea some years back, think i will check into it. My lowest Thinkingabout Nov 2013 #13

I woke up the first morning and couldn't separate arthritisR_US Nov 2013 #14