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Bobstandard

(2,397 posts)

16. Can we find a patient advocate for LuckyCharm?

Mon May 25, 2026, 03:26 PM

May 25

Someone local. Someone with relevant experience. Someone who can arrange for LC to have copies of all the Physicians Notes? Someone to work the refs on behalf of LC?

Stories like this piss me off. It ain’t right.

(I’m pulling for you LC)

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niyad Ms. Toad orleans BlueHurricane LuckyCharms MLAA Lefta Dissenter blue_jay Nittersing mopinko appalachiablue calimary justhanginon

103 replies

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Highlight:

I'm freaking out a bit. [View all] LuckyCharms May 25 OP

We're pulling for you. ❤️ underpants May 25 #1

What underpants said. irisblue May 25 #2

Yes. Harker May 25 #4

+1 pat_k May 25 #45

Sending a warm hug your way Lifeafter70 May 25 #3

Hugggggs. We are all here for you. niyad May 25 #5

I've found, over the last 10+ years, that personalized caring has decreased tremendously. erronis May 25 #6

Can't overestimate how critical being your own advocate is. pat_k May 25 #50

With my dad and now my husband, I've found they can't focus on telling the doctor summer_in_TX May 25 #87

Excellent points I need to do a better of keeping in mind. pat_k Tuesday #92

Grrr. summer_in_TX Tuesday #95

It's scary Marthe48 May 25 #7

Sending hugs cate94 May 25 #8

Next visit SuzyandPuffpuff May 25 #9

A nice reminder that there are sicker people than me here on DU. KS Toronado May 25 #10

We don't communicate often, but I read your posts... LuckyCharms May 25 #48

OK Lucky practice what you preach .........."You hang tough, OK?" KS Toronado May 25 #51

You better be doing the best you can! LuckyCharms May 25 #52

I keep you in mind Marthe48 May 25 #75

Please hang in there, KS Toronado Niagara Tuesday #102

I hear you and I understand FakeNoose May 25 #11

Not trying to complicate your anxiety but... littlemissmartypants May 25 #12

You know, on this exact date last year, 2025... LuckyCharms May 25 #66

Did you find a new neurologist? Did anyone actually share with you that you... littlemissmartypants May 25 #70

LMSP.... LuckyCharms May 25 #71

Don't make me have to come over there, LC! littlemissmartypants May 25 #72

I'm ringing my doorbell button!!!! LuckyCharms May 25 #73

I'm paddling as fast as I can. littlemissmartypants May 25 #74

One oar? LuckyCharms May 25 #76

😉 littlemissmartypants May 25 #77

Good luck, seriously! But you should tell your wife. She needs to know. LymphocyteLover May 25 #13

Sending hugs. iluvtennis May 25 #14

I sincerely hope your medical providers can find solutions Tanuki May 25 #15

The Ohio Low Vision Agency were immensely helpful Marthe48 May 25 #79

Can we find a patient advocate for LuckyCharm? Bobstandard May 25 #16

I think that is a very important suggestion. niyad May 25 #26

I do, too. calimary Tuesday #94

🫂🫂🫂🫂🫂🫂 Chicagogrl1 May 25 #17

Sending hugs to you ,Lucky, debm55 May 25 #18

I'm so sorry you have to go through this. Aging is awful Mr. Mustard 2023 May 25 #19

I'm sorry you're going through this, LuckyCharms. Buddyzbuddy May 25 #20

Sending you positive vibes. greatauntoftriplets May 25 #21

I'm with whoever said stage left May 25 #22

I wish I had the cure for you blue-wave May 25 #23

I have AMD, the wet form in my left eye for which I receive injections Joinfortmill May 25 #24

Your friends here care about you, amigo JoseBalow May 25 #25

Oh my goodness! I certainly hope everything is figured out and worked out. LoisB May 25 #27

We hear you markie May 25 #28

Uhm, kozar May 25 #29

Uhm, who said I was confused? LuckyCharms May 25 #30

Ok you're freaking out, kozar May 25 #34

Ok kozar... LuckyCharms May 25 #35

Post removed Post removed May 25 #37

Bye now. LuckyCharms May 25 #38

Post removed Post removed May 25 #53

!!! LuckyCharms May 25 #57

You were right to speak up. The last thing you need or deserve Tanuki Tuesday #93

Sorry about all the anxiety. Figarosmom May 25 #31

I don't blame you for freaking out or venting Niagara May 25 #32

One eye blind myself Bmoboy May 25 #33

I wish you the best. LuckyCharms May 25 #83

That's a huge load of stress. So much Ilsa May 25 #36

Several of those things are related to diabetes. Ms. Toad May 25 #39

My best a1C recently has been 6.8... LuckyCharms May 25 #42

It's not clear to me whether the impact of tight control on vision is because of the insulin - Ms. Toad May 25 #68

You always post great helpful advice. Thanks so much. LuckyCharms May 25 #69

All the best to you Lucky and just one thing mountain grammy May 25 #40

Oh she knows about it, mountain grammy... LuckyCharms May 25 #41

Good.. So glad to see this. mountain grammy May 25 #44

I can relate LC. Having issues as well and my eye doc retiring. Cataracts maybe.Blurry. Evolve Dammit May 25 #43

Wishing you all the best richdj25 May 25 #46

I know where you live and perhaps specialists are somewhat limited. Katinfl May 25 #47

That might be the next step... LuckyCharms May 25 #49

sorry you are suffering Kali May 25 #54

Thanks so much, Kali. LuckyCharms May 25 #55

diabetes is sure a suspect in degenerative eye things. rampartd May 25 #56

LuckyCharms, I'm so sorry. I can't imagine. You are in my thoughts, and I'm glad Scrivener7 May 25 #58

I'm so sorry you're going through this, Lucky. Diamond_Dog May 25 #59

Your typing is really good for someone with bad floaters! True Dough May 25 #60

asd jb kkarfty!!!!!111!!! LuckyCharms May 25 #61

Hold on! True Dough May 25 #62

!!! Kali May 25 #63

loma... LuckyCharms May 25 #64

I'm so sorry, LC. Sending hugs and healing vibes. My sister's dealing with multiple eye problems, too, highplainsdem May 25 #65

Thanks so much highplainsdem... LuckyCharms May 25 #67

Hugs and good strong wishes some_of_us_are_sane May 25 #78

I hope the current doctors or maybe a new one, can sort things out for you. I understand the anxiety appalachiablue May 25 #80

Good vibes, good wishes, and big hugs to you, Lucky Bayard May 25 #81

LuckyCharms have some healing vibes...... pdxflyboy May 25 #82

Oh hugs, Lucky WhiteTara May 25 #84

I hope you find a specialist who will take his time and figure out if a transplant would help. 58Sunliner May 25 #85

Lucky, it's okay to be scared. hamsterjill May 25 #86

Healing vibes on the say to you SheltieLover May 25 #88

Sending big hugs, LC. summer_in_TX May 25 #89

When the thoughts get negative practice redirecting your thoughts oldmanlynn May 25 #90

Smoke more pot. OAITW r.2.0 Tuesday #91

Thinking of you friend. Dunc Tuesday #96

Completely understandable orangecrush Tuesday #97

I hope this will help. Trueblue Texan Tuesday #98

My good friend. I am very sorry to learn of you going through all this. NNadir Tuesday #99

Effing diabetes! Healing and calming energy to you LC 💚🩵 Clouds Passing Tuesday #100

Hang in there, my friend UpInArms Tuesday #101

I am sorry this is happening to you Bettie Tuesday #103