Third Remission of Lymphoma

[bmichaelh]

I got the results from my PET scan this week.

I have been in remission for almost 6 months.

I have been living with lymphoma for over 30+ years.

First remission was 13+ years; second remissions was 16+ years; this is my third remissions.

I have NOT forgotten that (TFG) wanted to repeal the ACA and I would have lost my life time limit and pre-existing protections. Before this last remission, my physicians tried 4 different type of treatments and all failed to varying degrees.

Thank all for those at DU who have given me well wishes in the past.

[Karadeniz]

1. Sending vibes for a marathon remission this time!

[ratchiweenie]

2. Three times WOW. I can't even imagine. Let's hope some amazing

genetic breakthrough is just around the corner.

[Xoan]

3. Keep on ...

keeping on.

[Wishful-Thinking]

4. Can you share what treatment they used that worked?

Congrats on your well-being.

I’m asking for my husband who is deciding what treatment to take for his second recurrence after 18 years.

[Freddie]

5. My brother had a recurrence after 22 years

He had an autologous (self) bone marrow transplant in 2019. Almost 4 years later he’s still in remission. Best of luck to your husband.

[bmichaelh]

7. Treatment for Remission

I am so sorry to hear about your news about your husband.
I am very happy to share with you what worked.
Monjuvi and Revlimid
Monjuvi is an infusion given once every 2 weeks.
Revlimid is a pill that you take at home.

My doctor is stopping Revlimid because I have been taken it for a year.
He will continue Monjuvi for the foreseeable future.

I knew that the treatment was working before I even had a PET scan.
I could not walk without a walker but gradually I stopped using the walker.

This was helpful to me in deciding on treatments.
https://www.cancer.org/cancer/non-hodgkin-lymphoma/treating/immunotherapy.html
It lists all of the types of immunotherapies available to non-Hodgkin's lymphoma.
I also created a subscription through Google News because they are developing new treatments for lymphoma.

I wish you all the best.

[irisblue]

6. 👏👏👏👏

[mercuryblues]

8. How wonderful.

I hope this one lasts longer than the last one.

[bmichaelh]

9. Thanks everyone

Thanks everyone for the well wishes.

Also, I sent a thank you note to President Obama on his website.

May not get a response.

But cancer care costs money and I would not have got my remission without the ACA and its protection against pre-existing conditions and life time limits.