The DU Lounge
Related: Culture Forums, Support ForumsWell, I got the bad news I was expecting from
my dearest friend Rory today.
His Melanoma has spread throughout his body and he's been given 3 months to live.
https://www.democraticunderground.com/10182235962
I took the liberty of using some of the GoFundMe donations and bought a used iPad that I can be in more easy touch with him as his MS is so advanced that he can't dial or answer his phone anymore.
I dread the conversations we're about to start having, but it's the very least I can do as his best friend.
I am now at the official point of requesting any advice that you all have having dealt with a terminal close friend or relative.
Please humor me as I just want to make sure I can serve him well.
If you feel comfortable doing so, I am listing my GoFundMe link as I really need to find a way to go spend a little time with him as my last face to face with him was several years ago.
https://www.gofundme.com/f/help-john-mckusick-overcome-health-and-financial-struggles
I understand if this is a difficult ask, my Birthday is November 5th, and there's nothing I'd love more than the opportunity to say thank you to him for all his wisdom and guidance over the years, not to mention just healthily saying our goodbyes in gratitude and the right way.
My bills are paid to December, and those are obviously my first priority.
I've lived most of my life in forms of isolation and as I wrote in a post a few weeks ago when I first found out, Rory has been the one constant in my life since March of 1996.
If I ever owed anyone a proper, tearful and loving face to face good bye, it is Rory.
I'm crushed by this news, but have been expecting it because I know him and he's avoided doctors for years unless absolutely necessary.
I will do my best to share my experiences with you, as I surely wish someone will do for me from theirs.
I write this in total love, and total heartbreak if that's possible as I can only be grateful that at least I get some kind of chance to say good bye.
Thank you,
Love, John
rubbersole
(10,774 posts)..of her fight with Parkinson's disease. Voice commands are all you need to make it work.
JMCKUSICK
(4,314 posts)How we can FaceTime if nothing else by voice.
Diamond_Dog
(38,845 posts)You sound like a very good friend.
JMCKUSICK
(4,314 posts)We've shared what amounts to daily life, joys, pains etc....for all these years, so it's incumbent on me to share this too.
elleng
(141,237 posts)May have been kidney.
They spent time lots of time together, including with out of town family. (They met in college, 60? years ago.)
Thanksgiving will be sad, as they spent that time together; his friend and wife entertained and cooked.
My friend just bought a tree for his yard (in DC suburb.)
Time is the big thing.
JMCKUSICK
(4,314 posts)I really want to get up there to see him.
nitpicked
(1,463 posts)This spells out what each of them are (palliative care is comfort care plus any desired treatment, hospice care is comfort care for those not wishing/able to undergo "curative" treatment and generally have a life expectancy of less than six months). My mother declined and died so fast that by the time the hospital got hospice treatment lined up, she was dead very shortly thereafter. (The hospice people kept reaching out to me for months offering bereavement care.) Depending on your friend's situation, there might be low or no added cost. Read the NIH article and follow the links.
JMCKUSICK
(4,314 posts)Tetrachloride
(9,194 posts)available in the store .
(message me for optional configuration )
my main browser on iPhone
dempls
(44 posts)Getting the chance to say goodbye is so important.
JMCKUSICK
(4,314 posts)I really really hope to be able to do that in the next week or two if I can.
sinkingfeeling
(56,655 posts)debm55
(51,807 posts)dickthegrouch
(4,136 posts)Semantically he's not dying until the last few seconds.
But treat him as normally as possible on any given day.
He's just sick, not dying. You both know the reality, but allowing him to experience life as he chooses, is the best gift possible.
If you can, take him out. Go to games, concerts, parks, whatever.
Suggest things in your price range (for both of you) in case he can't afford it. Tell him it's your gift to him.
Have a plan for emergencies, but don't feel bad if the plan doesn't work. He was living the best you could help him to do.
Miserable people all around him will see him off faster. You can be miserable afterwards.
Remember the last thing to go (apparently) is hearing. If you can, tell him you love him as he passes or very soon after.
Make sure you have access to him for the entire time. Even if it means asking him to write a medical proxy for you.
Hope that helps.
debm55
(51,807 posts)red dog 1
(32,016 posts)(I wish I could afford to donate)
JMCKUSICK
(4,314 posts)The kick sure helps.